I’ve been thinking about the future. It’s that time of year. Looking ahead.
This year I’m especially thinking about My future…what I should do with the Time.
Since I am no longer the sole educator of my children, I’m wondering what might be next. Maybe nothing… but maybe Something. Who knows.
I was talking to my daughter about an Idea. Playing with a vision. Processing. You know….
What do you think? Can you see it?
Do you think I could do it?
She tilts her head. I think you’d be good at it…while you’re weak. But if you ever get strong, you’d be awful. You don’t do Arrogant well.
Well, that’s why God gives us daughters. They’re the only ones who can say such things and get away with it.
But I can’t stay sad forever, I tell her.
She smiles. Sadness is your strength. You’re at your best when you weak. Unsure of yourself. You give the best advice when you’re There.
Well, that explains a lot.
Like this past Christmas Day.
Continue reading “THE NEW STRONG”
I see a blue and white comforter spread across my lap when I remember the beginning of this journey. How appropriate. Who knew that Blue would be the color of Autism Awareness Month so many years later….
I was waiting for the phone call. My husband had met with the surgeon the day before, and now he paced the sterile halls of Johns Hopkins Hospital waiting for word of how it had gone.
“We need to finish the heart surgery in 20 minutes. At 25 minutes, she will lose the function of her legs. At 30 minutes ….” He had informed us.
How we prayed! How we watched the clock tick by!
My sweet baby was only four days old. Five pounds was all she was, but every ounce was precious to us. We called her Grace.
We knew while I was pregnant that something wasn’t right. The day after she was born we met with a specialist who laid it out for us. Correctable heart defects now, possible kidney issues, hearing would probably be a concern. Oh, and growth and thyroid to watch for.
No one knew that autism would be added to the list, or that autism would end up being the biggest concern of all.
Continue reading “RAISING A DAUGHTER WITH AUTISM: GRACE MIXED WITH GRIEF”